Allison was 15-years-old when she died. It was three months after her second heart transplant and she had been admitted into 4112 – the reverse-isolation room in the Cardiovascular Pediatric Intensive Care Unit. For me it was the first of two 12 hour night shifts that would eventually blur together, leaving my insides groping for understanding.
As I stood in the anti-room of 4112 listening to report, it was all I could do not to stare through the glass doors at the electrical bed that cradled her -- she is someone’s daughter . . . that could be my child in that bed -- my thoughts briefly abandoned my colleague.
Report staggered on and on, the amount of detail in caring for a patient whose body is rejecting an organ is astounding. I wondered how I had come to be here in this room at this moment with this assignment . . . taking care of this child.
When I entered the room, I must have looked like an alien to Allison – with the yellow paper gown, shoe covers and face mask, the baby-blue head covering into which I had shoved all my hair, and the plastic gloves that made my hands appear pearly white.
“Hi, Allison. I’m Julie and I’m going to be your nurse tonight.”
She was sitting up in the bed, the television was on and she was playing with the Band-Aid-looking light wrapped around her index finger.
“I like this red light.” She said, holding up her finger, playing with the white chord attached to it. She looked weary and small in the oversized bed.
I picked up the television remote and muted it. “Pretty cool, isn’t it? Do you know why it’s there?”
“No.”
“It’s measuring the amount of oxygen in your blood.”
“This little light can do that?”
“Allison, do you know why you’re in the hospital?”
“Because I didn’t take my medicine.”
I had been inspecting the IV pumps, drainage tubes and all other equipment attached her.
“It’s a little more complicated than that. Your body is rejecting your new heart.” I explained.
“Because I didn’t take my medicine.” She laughed. “I hate taking medicine.”
I laid down the chart I had been writing on, pulled my stethoscope off my neck, and began taking a closer look at my patient.
“You want to tell me about it?”
“I just didn’t want to do it.” She twisted around in the bed. I asked her to take some deep breaths while I listened to the fluid build-up in her lungs, then to breathe normally so I could listen to her banging heart . . . the third heart this body had housed in 15 years.
“Why not?” I began checking her pulses and capillary refill, all the way down to her feet.
“I want to be like other kids, that’s all. None of my friends have to take that crap. None of my friends have to be in bed at 10 o’clock every night. None of my friends have to pass on trips to the mall so they don’t catch a cold or get the flu. I hate it, that’s all. I hate it.”
Right now in the middle of these woods, I know exactly how Allison felt --- I hate being here. I hate doing this. That’s all. I just hate it. At the other end of the woods, somewhere I can’t see right now, the sun is setting. I know because I can feel the forest chill settling in around me as the tops of the trees bend near. Sitting here with my back against the bark of a Maplewood, my mind is thinking about Allison. I can’t get her precious face out of my head today – the live, animated face or the dead, fixed face.
Allison smiled a short laugh toward me while I checked her dressings. “Last week my friend Star helped me sneak out of my room. We walked all over the neighborhood at midnight.” Her head shook from side to side with sparkle, then she dissolved into a coughing fit.
“It’s okay,” I assured her. She brushed it off.
“When my mom gave me medication that night, I hid it under my tongue then went to the bathroom and flushed it.”
“How many times did you do that?”
“All the time.”
“You know you need medicine to stay alive right now. You know that, right?”
Her onyx eyes already round and wide found mine. “But I felt fine. And taking those crap pills made me feel bad, sick to my stomach. Anyways, I couldn’t stand my friends always looking at me like I was gonna break or something. I hate it, that’s all.”
The next night, as I reported for my second 12-hour shift, room 4112 was quiet. Allison lie in the monster-sized bed and most of the supplies had already been put away. It was the first and only time I had ever received report on a person who was deceased.
“She went into cardiac arrest about an hour ago,” a fellow nurse explained. “You’re going to have finish up here.”
As soon as report was over, without a yellow alien outfit on, I headed in to see Allison. I closed the doors to the anti-room and pulled the curtain across the glass doors and windows, in case her mother should come by. As I lifted the sheet back to look at her one more time, I could feel my insides fill with a cold and lethal pain.
“Why didn’t you just take the stupid pills?” I whispered at her. But my question didn’t get an answer.
I removed her body from the bed onto a gurney and gathered the final paperwork and her chart. As I wheeled her to the morgue, there was only one thought rolling over and over in my mind, I hate this. That’s all, I just hate this.
The forest is almost black now. I haven’t moved from this spot all day, but I don’t care. All I can think about is how something as insignificant as a tiny pill can mean the difference between life and death sometimes. I’m sure her mother screamed at her, pleaded with her to take her medication. Inside my head I can hear the fight, “Get over it, Allison, you’re not like other kids. Don’t you realize that? This is your second heart transplant, don’t blow it this time. You will never be like your friends, just give up that idea right now. Don’t you want to live, baby? Don’t you?”
Now I know why she didn’t take the stupid pills. It is overwhelming how illness and medication, surgery and disease can demote human beings. How they work in unison to turn people into frightened morsels of helplessness. How they back you into corners where your only choices are the blue pill or the red pill? This disease or that one? The long scalpel or the short one?
Allison’s choice for normalcy, while it lasted, doesn’t seem to be a choice at all for most people. It appears to be an obvious choice for death. “You do what you have to do to live!” So many people have spoken or shouted that one at me recently. I’m sure Allison heard it a time or two as well. As I step inside Allison’s world and look outside her eyes, I can see the corner she was trapped in and the anguish to be anywhere but where she was.
There are so few clear moments in the woods. And all I can think is I hate this. That’s all, I just really hate all this . . . pass the red pill, please.